TLI to Assist Mayo Clinic in Development of a Limb Loss and Preservation Registry

Mayo Clinic has awarded a subcontract to the Thought Leadership & Innovation Foundation (TLI) to assist with the development and launch of a Limb Loss and Preservation Registry for the National Institute of Child Health and Human Development. This single award indefinite delivery/indefinite quantity (IDIQ) contract has a ceiling of $5 million over a five-year period. For the past three years, TLI has worked with the Mayo Clinic, the American Joint Replacement Registry (AJRR), and the American Orthotic & Prosthetic Association (AOPA) to advance rehabilitation of individuals having undergone limb loss and limb preservation surgeries.

Supported by the National Institutes of Health (NIH) and the Department of Defense (DoD), the database will be the first national registry in the United States of its kind by including adults and children, with a goal to collect data which could lead to prevention of limb loss and improve pre- and post-surgical treatment and rehabilitation efforts for this population.

The Limb Loss and Preservation Registry, which is projected to be operational in 2020, will be made available to researchers studying medical conditions that contribute to limb loss such as diabetes and vascular disease. In addition, the research community will be able to analyze the data by age, gender and type of limb loss or preservation surgery.

The development of the Limb Loss and Preservation Registry will demographically and geographically represent the U.S. population. The DoD is partnering with NIH on the database to help improve the quality of care for active military personnel and veterans, highlighting the ongoing coordination and collaboration among federal partners in rehabilitation research.

“The joint effort between federal agencies allows us to collect data that will inform research and improve the lives of all citizens coping with limb loss,” Dr. Alison Cernich, Director of the National Center for Medical Rehabilitation Research (NCMRR) within NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development.

For more information on the Limb Loss and Preservation Registry, please see: https://www.nih.gov/news-events/news-releases/nih-dod-develop-limb-loss-preservation-registry